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212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan  Syndrome & Jordan's Guardian Angels - 21st Century Dads
212 - Joe Lang of Sacramento, CA, Whose Daughter Jordan is the Namesake for Jordan Syndrome & Jordan's Guardian Angels - 21st Century Dads

Having my legs cut off was the best thing that I've ever done - Mirror  Online
Having my legs cut off was the best thing that I've ever done - Mirror Online

JGA Rare Disease Day 2020 | Alone we are rare, together we are strong! This  #RareDiseaseDay2020 help us spread the word and together we will change the  world! #WeTackleRare... | By Jordan's
JGA Rare Disease Day 2020 | Alone we are rare, together we are strong! This #RareDiseaseDay2020 help us spread the word and together we will change the world! #WeTackleRare... | By Jordan's

Jordan's Journey - Dravet Syndrome - YouTube
Jordan's Journey - Dravet Syndrome - YouTube

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Jordan's Syndrome on Twitter: "Living with Jordan's Syndrome can be tough-  but our #RareWarriors are tougher 💪 Want to follow Hailey's journey? Check  out @MamaBearForRare across platforms. Caption: The video pans over
Jordan's Syndrome on Twitter: "Living with Jordan's Syndrome can be tough- but our #RareWarriors are tougher 💪 Want to follow Hailey's journey? Check out @MamaBearForRare across platforms. Caption: The video pans over

Resource Center – Jordan's Guardian Angels
Resource Center – Jordan's Guardian Angels

Resource Center – Jordan's Guardian Angels
Resource Center – Jordan's Guardian Angels

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Jordan's Guardian Angels - Vision differences are another area flagged as a  concern within the Jordan's Syndrome community. The challenges include  nystagmus, strabismus, amblyopia, and nearsightedness to name a few.  Glasses and
Jordan's Guardian Angels - Vision differences are another area flagged as a concern within the Jordan's Syndrome community. The challenges include nystagmus, strabismus, amblyopia, and nearsightedness to name a few. Glasses and

The unanswered questions of Alzheimer's patients with Down syndrome lead to  unabashed compassion
The unanswered questions of Alzheimer's patients with Down syndrome lead to unabashed compassion

PPP2R5D-related intellectual disability: MedlinePlus Genetics
PPP2R5D-related intellectual disability: MedlinePlus Genetics

Gene Defect Linked to Disfiguring Disorder | National Institutes of Health  (NIH)
Gene Defect Linked to Disfiguring Disorder | National Institutes of Health (NIH)

Cycle Jordan fundraiser for Down syndrome in Toronto | The Star
Cycle Jordan fundraiser for Down syndrome in Toronto | The Star

Jordan's Syndrome on Twitter: "Happy Midsummer from our family from  Sweden!! #ppp2r5d #jordanssyndrome #jordansguardianangels #midsummer2018  https://t.co/i7g4n9WuDl" / Twitter
Jordan's Syndrome on Twitter: "Happy Midsummer from our family from Sweden!! #ppp2r5d #jordanssyndrome #jordansguardianangels #midsummer2018 https://t.co/i7g4n9WuDl" / Twitter

A Tragedy in the Kennedy Family Saved My Preemie — and I Got to Thank Them
A Tragedy in the Kennedy Family Saved My Preemie — and I Got to Thank Them

The Foundation – Jordan's Guardian Angels
The Foundation – Jordan's Guardian Angels

In Time to Help Jessie | Emory Medicine Magazine | Emory University
In Time to Help Jessie | Emory Medicine Magazine | Emory University

Without this place, I honestly don't know what our family would do' -  Eternity News
Without this place, I honestly don't know what our family would do' - Eternity News

Jordan's Syndrome (@JordansGAngels) / Twitter
Jordan's Syndrome (@JordansGAngels) / Twitter

Down Syndrome & Sleep Apnea: Jordan's Journey
Down Syndrome & Sleep Apnea: Jordan's Journey

What is Jordan's Syndrome? - Mama Bear for Rare
What is Jordan's Syndrome? - Mama Bear for Rare

Jordan's Syndrome - Patient Worthy
Jordan's Syndrome - Patient Worthy

Does Your Child Have Jordan's Syndrome? | Independent Voter News
Does Your Child Have Jordan's Syndrome? | Independent Voter News

Rare Disease Day: Yara's Story - National Organization for Rare Disorders
Rare Disease Day: Yara's Story - National Organization for Rare Disorders

What is Jordan's Syndrome? - Mama Bear for Rare
What is Jordan's Syndrome? - Mama Bear for Rare

Having my legs cut off was the best thing that I've ever done - Mirror  Online
Having my legs cut off was the best thing that I've ever done - Mirror Online